Unique campaign to spread epilepsy awareness
- Bhalchandra Chorghade

- 2 hours ago
- 2 min read

Mumbai: Jiyo Samman Se Run 2.0, organised by Samman Association, the Mumbai chapter of the Indian Epilepsy Association, stands as a significant public health and social awareness initiative aimed at addressing the persistent stigma surrounding epilepsy. With participation exceeding 1,100 individuals, the event has emerged as India’s largest run dedicated exclusively to epilepsy awareness, reflecting both its growing reach and the increasing public willingness to engage with the cause.
Held at the Bandra Fort seafront, the event’s strategic location and inclusive design contributed to its success. Participants included persons with epilepsy, caregivers, medical professionals, families, volunteers and fitness enthusiasts, symbolising a collective approach to advocacy. The diversity of participants reinforced the event’s central message: epilepsy is not a marginal issue but one that requires broad societal understanding and inclusion. The presence of multiple run categories -- 3 km, 5 km and 10 km -- ensured accessibility across age groups and fitness levels, further strengthening community participation.
The run’s alignment with International Epilepsy Day and the global #50MillionCampaign added international relevance to the initiative. By connecting local action with a global movement led by the International Bureau for Epilepsy, the event amplified its advocacy potential. This linkage underscored the scale of epilepsy as a global health concern, affecting nearly 50 million people worldwide, and highlighted the urgent need for awareness, rights and equitable access to care.
Symbolism played a crucial role in the event’s impact. The widespread use of purple, the global colour for epilepsy awareness, transformed the venue into a powerful visual statement. Additionally, the flag-off of the 10 km run by Robin Behl, the fastest Indian to complete the Antarctic Ice Marathon, added credibility and inspiration, bridging athletic excellence with social responsibility. Such high-profile involvement enhanced visibility and media appeal, essential components for sustained advocacy.
Statements from Samman Association’s leadership further contextualised the event’s significance. Dr. Sangeeta Ravat emphasised the unexpectedly high turnout as evidence of an unmet need for epilepsy awareness and equality. This observation suggests that despite medical advances, social barriers and misconceptions remain prevalent. Dr. Jayanti Mani’s remarks highlighted the psychological and social dimensions of the initiative, noting how fitness-based collective activities can foster confidence, positivity, and solidarity among persons with epilepsy while dispelling fear rooted in misinformation.
The success of Jiyo Samman Se Run 2.0 also reflects the long-standing credibility of Samman Association. With roots dating back to 1971 and formal establishment in 1998, the organisation has consistently addressed epilepsy through awareness campaigns, support groups, counselling, professional training, and rural medical camps. Its sustained engagement with underserved communities strengthens the legitimacy and long-term impact of such public events.
The run transcended the boundaries of a conventional sporting event to become a meaningful social movement. By combining community participation, global alignment, symbolic advocacy and institutional credibility, the initiative demonstrated how collective action can challenge stigma and promote dignity. The event serves as a replicable model for health-based advocacy, proving that when communities move together, societal barriers can be left behind.




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